My first blog post – Hello

My name is Lana, but my children gave me a nickname long time ago, “Loofy,” so that’s my go to name these days.

I am not much of a talker these days, but believe me, I have lots of interesting thoughts circulating in my head all day, and I am excited to invite you all in. P.S. I experience lots of cool things on a daily basis from where I sit that I would like to share with you.

I am living with ALS, and have been for 11 years now, which has rendered me incapacitated. It has taken over every muscle in my body, except my mind and spirit – those still belong to me. In fact, with every physical muscle atrophying, my spirit has grown in strength. I hope through reading my blog you will get to see what has nourished me with life and strength to survive this so-called “illness.”

I am motivated by my love for my family, which is the greatest, strongest fuel for life.

(Above photo credit: Ali Saadi)




27 thoughts on “My first blog post – Hello

  1. Loofy!!! Helllllloooo and so excited for you!! Great read and you are one amazing inspirational motivating sis!! Love you habibti !! Looking forward to reading so much more of your great thoughts!!!

    Liked by 1 person

  2. Hello, Im a friend of Nadia (above) and I hear about you constantly … You are truly setting a standard and changing the world and its perception of this condition. Keep it up and you already have my and Im sure of it other peoples support all the way.

    Many Regards and all the best,

    Liked by 1 person

  3. People like you is what makes life worth living. You are such an inspiration and I love your blog your spirit and determination will inspire people and generations to come. You win loofy

    Liked by 1 person

  4. Hello Loofy!
    I am Nadia Stephan’s sister-in-law. I don’t know you personally, but I felt compelled to say “hats off to you” for your courageous soul and your adamant determination to move forward…regardless! Good luck with your blog and may you always be surrounded with love and light🙏

    Liked by 1 person

  5. I am so glad to get this on my Facebook
    My name is Rasha Khoury and I am honoured to read your thoughts
    I want to thank you for your courageous venture you are an inspiration to all .

    Liked by 1 person

  6. Hats off to you my dear. Although I don’t know you personally, but I always hear about you from your friends.
    Your strength and positivity is such an inspiration to many. Keep it up.

    Liked by 1 person

  7. Omg Lana u r such an amazing woman! I haven’t seen u in ages but all thru the years I used to check on u thru Sousou M & Sereene D! My mom had ALS and I just wish she had half your strength & determination to fight the illness the way u fought it,,, Very few r the ones who have your courage, patience & tolerance Lana! Hats off to u my dear & keep up the high positive spirit of yours 👍🏼👍🏼👍🏼
    God bless yr sweet heart!🙏🏻🙏🏻❤️

    Liked by 1 person

    1. Dearest Lana you are an inspiration to us all,you have touched so many people with your strength, your determination, and your positive attitude.
      Good luck with your blog ,please keep on writing .xoxo

      Liked by 1 person

  8. Loofy my dear I have no doubt that this blog will be a huge success to add to your previous successes. I already read all your posts and eager to read more bec whatever you write is coming from a great, smart, wise, funny, beautiful lady. Keep it up habibti. God bless you 🙏🙏❤️❤️

    Liked by 1 person

  9. One of a kind my dear Loofy is what you are. I am in awe of your strength, your beautiful character that shines in your eyes and smile and your determination to make the most of your situation. God bless you habibti and may you continue to be a beacon to all who have the pleasure of knowing you and calling you a friend ❤️❤️❤️

    Liked by 1 person

  10. Hello Auntie Lana,

    What a great inspiration you give to all of us, thank you for your positivity I am glad to know about your blog , and to follow up on your amazing posts May God bless you and keep you safe and happy with your lovely family.

    We have never met but I was lucky enough to work for a very short period of time with the lovely character Karim who we call (karimO) .

    Liked by 1 person

  11. This is one of the best blogs I stumbled upon…. God bless you for your courage and for sharing your mind blowing self power. You sure are a miracle and those who find you and surround you are the lucky ones. My warmest wishes are sent your way.

    Liked by 1 person

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